About Glioblastoma Multiforme

In early December 2012, Dustin was diagnosed with stage 4 (severely rapid & aggressive) brain cancer known as glioblastoma multiforme. There are only approximately 140,000 people in the world with this at varying stages and severeness. He is approximately 1 of 200 in the world in their 20′s. The typical age is in their 50′s.

The hospital he was at in Florida, said they could not operate because quite frankly they do not have the technology or experience for something so severe. It is also fairly close to the brain’s “motor strip” which apparently controls all the body’s movement.  If it is too close or touching this, they cannot operate.  Some of the more specialized hospitals may be able to map how close it is and avoid it. He has a 1″ tumor along with 3 smaller clusters near it currently.  We are also exploring chemotherapy, radiation, as well as clinical trials.  He currently has appointments with Duke University Medical Center and Johns Hopkins Medicine. Dr. Toms, Director of Neurosurgery at Geisinger, will be assisting as an independent consult to help guide us in the right direction.

Age & health are the best thing he has for him. He’s only 28 and an ultra-marathon runner (50+ miles at a time). Stats show age alone is the only common denominator across all forms of cancer on the likelihood of surviving.  Dustin is a fighter and has one of the strongest faiths of anyone I’ve ever known.  Please see how you can help him in his fight, by visiting the “How You Can Help” page.